Type1 is a non-profit network and community providing policy advice and new ideas regarding diabetes type 1. Type1 – Thinktank for Diabetes is a think tank for diabetes striving to improve the lives of people with diabetes and other complex chronic conditions.
We are an independent patient association with no political, commercial, or religious ties driven by volunteers who either live with type1 diabetes, are next of kin to people with type1 diabetes or work professionally in this field.
Through advocacy work, education of healthcare professionals, peer-to-peer networks, policy development, and public affairs, we strive to create more coherent, forthcoming, and efficient healthcare systems.
1. Overview
We are a non-profit network and community providing policy advice and advancing new ideas regarding diabetes type 1. The think tank is led by people with type 1 diabetes, healthcare professionals and others working in the field of chronic disease management.
We do not have office locations or a secretariat. We are representing a shared set of key values:
1) People before the system – Treatment and care should be centred around people with type 1 diabetes not the healthcare system or the pharmaceutical industry.
2) People before the disease – #languagematters, it might seem trivial, but we are people living with a chronic disease, not diabetes.
3) Knowledge – People living with type 1 diabetes are their own main healthcare professional 24/7/365. This requires that we have access to evidence-based knowledge and insights equal to nurses, doctors and diabetes educators, especially when it comes to new drugs and technologies.” Nothing About Us Without Us”.
4) Democracy – People with type 1 diabetes should be represented in the boards of all major institutions dedicated to diabetes care. Our insights are needed.
5) Network – Peer to peer collaboration in the diabetes type 1 community makes the difference.
2. Types of memberships
We offer three types of memberships to support our work (print the document as PDF below).
Type1 – The Danish Thinktank for Diabetes is founded and hosted by The Danish Association of Type 1 Diabetes (in Danish “Foreningen Type1”). We offer three types of memberships to support The Danish Association of Type 1 Diabetes
3. Cooperation takes place within applicable company ethics rules
To ensure openness and transparency, the collaboration with company members takes place in accordance with “Ethical rules for the pharmaceutical industry’s collaboration with patient associations, etc.” and “The Medico industry’s guidelines for collaboration between the medico industry and healthcare professionals 2018”.
4. Social media is a cornerstone of our work
Social media is a cornerstone of our work with advocacy and knowledge sharing. This is where we share and debate news, for example from international diabetes conferences such as ATTD, EASD, ISPAD, ADA and IHI.
This is where we communicate our political work and share events. This is where our members write about their challenges with diabetes and wishes for the think tank’s further
work. This is where we ask our community for advice and ask that they share their opinions and views.
You are like everyone else welcome to read on our Facebook page. On LinkedIn
5. Fiery souls – a hard-working and committed core group
In the hard-working and committed core group, we are currently 6 people who work voluntarily for the think tank. In addition, we have a handful of people who gradually help us solve the many different tasks.
We use your support to help even more people and families living with type 1 diabetes and be their mouthpiece for politicians and sparring partners with diabetes clinics across Denmark.
We are firmly represented and deeply committed here:
- Danish Society for Patient Safety
- The patient ambassador network
- Project National App Guide
- Advisory Board member for medicin.dk
- Working group on the National Quality Program
- Looped Denmark
- #DeDocVoices
- The Data Saves Lives’ Initiative (Copenhagen Healthcare Cluster)
- Returpen™Novo Nordisk (climate control on recycling of injection pens)
- CODIAC 2020 research project on user involvement (Steno Diabetes Centre Copenhagen)
- The OPEN Project (DIY closed loop system)
- Children with Diabetes Type1 (formerly JDRF Denmark)
- as well as various ad hoc collaborations and tasks such as recruitment, advice on consultation responses and application for access to documents, emails, policy papers, etc.
6. Behind the thinktank is the ’The Danish Association for Type1 Diabetes’
’The Danish Association for Type 1 Diabetes’ is a non-profit, non-religious and politically independent association, which organizes everyone with an interest in type 1 diabetes and similarly complex chronic diseases and medical conditions (hereafter only type 1 diabetes or type 1 is mentioned, but type 1.5, LADA, Mody, 3c and the like are also included).
7. The purpose
The purpose of the association is to:
- Promote the understanding and awareness of type 1 diabetes in civil society, in the political system and in the public debate.
- Create opportunities for people with type 1 diabetes to have such a good life that they can achieve the best benefit based on the individual’s resources and prerequisites. Including ensuring access to the most effective medical treatment, aid, and care.
- Develop the dialogue and network between people with type 1 diabetes and between families with children, adolescents, or seniors with type 1 diabetes.
- Communicate knowledge about living with type 1 diabetes to people with type 1 diabetes and others – including to people with close relatives (children, adolescents, or relatives of seniors) with diabetes and to the health professionals who work with people with type 1 diabetes.
- Impact on society to create the best possible framework and structures for the group of children and adolescents and the group of seniors with type 1 diabetes.
- Promoting activities that have a holistic, evidence-based health approach to people with type 1 diabetes.
- To work to promote and conduct more research in life with type 1 diabetes.
We are happy and proud that we have also attracted talented volunteers and official partners.
Type1
The purpose is sought to be fulfilled by:
- supporting the establishment, development, and operation of the socio-economic enterprise Type1 – Think tank for diabetes, economically, professionally, and democratically.
- participating in or carry out development activities, networking and in the public debate in collaboration with the socio-economic company Type1 – Think tank for diabetes.
- collaborating with those who have an interest in promoting the association’s purpose.
- organizing volunteer work that can further the association’s purposes.
Through our work, we:
- Make data about the life with type 1 diabetes available to the health care professionals at Danish Diabetes Centers, the media, scientists and organizations and to our type 1 diabetes community.
- Deliver information and research about type 1 diabetes to our community.
- Support other Danish Advocates, associations, individual volunteers and companies by offering research, network, conferences, books and courses about type 1 diabetes.
8. Our specialities are
9. Type1 values are
- People before the system
Treatment and care should be centred around people with type 1 diabetes not the healthcare system or the pharmaceutical industry. - People before the disease
Language matters, it might seem trivial, but we are people living with chronic disease, not diabetics. - Knowledge
People living with type 1 diabetes are their own main healthcare professional 24/7/365. This requires that we have access to evidence-based knowledge and insights equal to nurses, doctors and diabetes educators, especially when it comes new drugs and technologies. - Democracy
People with type 1 diabetes should be represented in the boards of all major institutions dedicated to diabetes care. Our insights are needed. - Network
Peer to peer collaboration in the diabetes type 1 community makes the difference.
One of Our latest campaign: Report! (June 2021). The headline says: “Will you help us improve the equipment?” The case is about reporting errors, failures, and deficiencies in diabetes equipment to the Danish Medicines Agency.